Today, there are over 350,000 people in the United States living with Down syndrome. Rapid advances in clinical treatment and greater attention to people with Down syndrome during the 20th century have increased the life expectancy of individuals with Down syndrome. As many as 80 percent of adults with this genetic condition, live to age 55 and beyond. This new longevity needs to be incorporated into lifetime planning when a child is born

with Down syndrome. The Constitutional law assumes that people over the age of 18 are competent to manage their own affairs regardless of disability, and parents are no longer considered legal guardians after this point. If protective provisions are not in place, the courts will make important decisions for you and your family. Physical, social, financial and legal issues must be considered, as well as siblings and service agencies. A well thought out life plan is essential for long-term quality of life for your loved one with Down syndrome.